WELCOME TO OUR FSHD WEBSITE!

The Dutch FSHD Foundation’s goal is to stimulate, facilitate and financially support solid scientific research into the causes of FSHD, in order to find treatments and develop solutions that help improve patients’ quality of life.

Having a muscular dystrophy like FSHD affects the way you walk, the way you dress, the way you work, the way you sleep, where and how you live, and the way people perceive and treat you. Many people with FSHD cannot smile, hold a baby in their arms, and close their eyes to sleep, walk on the beach or climb the stairs. Each day brings renewed awareness of the things they may not be able to do the next day.

Unfortunately, neither a cause for FSHD nor any treatment for it has yet been found. That’s why research is so important.

Click here to read more about our activities and projects.
Or become a sponsor! Click here to find out how you can support us.