Who is behind the FSHD foundation?
Executive committee
The executive committee of the FSHD foundation consists of a small group of highly motivated volunteers that in their daily lives are engaged in business or science.
- C.J. van der Graaf (Chairman) Former Executive Board Member, Unilever
- A. Vriesendorp Entrepreneur, Wassenaar
- C.T. Verrips Scientist, Utrecht
- M.C. van Hal, Marketing & Media Consultant, Amersfoort
- R. Broekgaarden, VSN/EAMDA
- T. Bergenhenegouwen Member diagnosis group, VSN
The committee is assisted by members of the FSHD patient’s association, medical and biochemical specialists and experienced directors and managers.
Recommending committee
- K. van Doodewaard, Former president TROS, Hilversum
- Em. Prof. Dr. H.J. Galjaard, Emeritus professor Genetics, Erasmus University
- Drs. J.C. Gmelich Meijling, Former State Secretary, Ministry of Defence, Netherlands
- Drs. C.G. van Luijk, Chairman & Partner Residex Ventures
- Ir. J.A.P. Montijn, Former chairman of the board Shell Netherlands, Internatio-Muller
- Drs. R. Pino, Life Alchemist/founder R. Pino Centre for Growth
- Mr. A. Ruys, Former chairman of the board Heineken
- Mr. M. Tabaksblat, Former Chairman Reed Elsevier plc and Unilever NV
Companies
The following companies have offered their services free of charge or at reduced rates:
- Accountant: Masman Bosman Accountants, The Hague
- Notary: Mr. M.F. Le Coultre, Hilversum
- Tax advisors: Van Klink, The Hague
- Lawyers: De Loos & Schrijver, Wassenaar
- Marketing: CIRCLE Marketing/Reclame B.V., Vlaardingen
- Web Development: Moona Consulting B.V., Amsterdam
- Webmaster: WizArt, Dordrecht